Fibromyalgia is a neurological disorder that affects many parts of the human body; it’s more common in women but can affect all races and genders. It’s a painful condition which can cause over 200 different symptoms. Most patients present with completely different symptoms and it’s very hard to diagnose, it’s only possible to diagnose after ruling out all the other illnesses first, this can be a lengthy process. Most doctors to not take it seriously as there is still allot to learn about the disorder. They still don’t know what causes the disorder and some say they never will, but I believe with enough research and dedication to the learn more that a cure could be found. Let’s go over the common symptoms which most patients experience.
Common symptoms to name a few
- Joint pain
- Muscle pain
- Nerve pain
- Brain fog
- Lack of concentration
- bladder problems
- Weaken immune system
- Balance issues
I myself struggle with some of these and there’s not a day that doesn’t go by that I don’t wake up in pain. It’s a chronic disorder which means that the person is in constant pain and yes there might be good days but that doesn’t mean were not in pain. Flares can also occur and these are times when your symptoms might be twice as bad as they normally are, and flares can last from anything to a couple of days or months. Pain is a terrible thing as it seems never-ending and allot of people with chronic pain suffer from mental illnesses such as depression, anxiety and ocd. I suffer with all three as well as health anxiety which is sometimes so bad I can’t leave the house or sleep. Most people with fibromyalgia are under a rheumatologist or neurologist or both. I have recently been referred to a pain clinic which I have yet to start but hope it will help a bit.
I hope anyone reading this who has fibromyalgia finds it useful and if you don’t have the disorder I hope you found it informative.
So mole biopsy results are back! I don’t have cancer thank god, but there are still changes to the mole so to be safe they want to remove the mole. Still feel a little in the dark about the mole because it’s not all been tested there’s a chance it could still be cancerous. I’m trying to stay positive but it’s hard, I’m like the biggest worrier and it’s hard not to think of the worst. Just can’t wait to get the mole removed then I don’t have to worry about it anymore. I feel like it has changed maybe got a little bit bigger, but keeping positive that’s all you can do.
The removal is pretty straight forward thank god! Also its pain free which is a bonus might leave me with a little scar but that’s better than cancer! Always check your skin people any changes to moles or skin like new scars or anything. Don’t use sunbed’s there so dangerous, there’s no safe way to use a sunbed. I’ve personally never used a sunbed or even fake tans; I love my tone of skin. Also don’t forget your head, check your scalp moles can appear on your head and can go unnoticed for ages.
So these last two days have been really stressful, yesterday I had my dermatologist appointment to get a mole checked on my head. The doctor I saw was lovely, he checked it and said it looked ok and even the nurse had a look. He said he was 100% certain that it was ok, and then this morning the receptionist rang and said that the doctor wanted to see me this Moring for a biopsy! How did he go from its ok to oh you need a biopsy, so obviously I was really worried. When I saw him today he said that when he reviewed the picture he said it looked like there was scarring on the mole, know idea what that means. So he did the biopsy, it didn’t hurt at all just a little scratch for the injection but that was it. It hurts a little now but taken some pain killers and its eased. I’m not really that concerned but the results take 3-4 weeks to come back! It’s such a long time to wait.
It’s just ironic that I was originally referred for a mole on my arm but my mum found the mole on my head two days after my gp referral. Lucky she did really if the doctor is a little concerned, looks like it’s just a waiting game now.
- Nipple inversion
- Nipple discharge
So for the last couple of months I’ve noticed my left nipple has been more inverted and looks noticeably different from the right. Didn’t really think much of it, then I had really bad pain in my left breast which went after a day. Then a couple of days later I had a sticky nipple, it was clear in colour and only on the left side. It was after I had done some exercise but I’ve never had a sticky nipple before. So I wasn’t worried till the discharge as that’s something I’ve never had before. So I booked a GP appointment, she felt my breast and could feel no lumps but due to my other symptoms she referred me to the breast clinic as an emergency. I wasn’t really worried before but I am now! Then a couple of days ago I had some really bad itching on my left breast and when I looked down, my blood vessels had burst and my breast was all red like a rash. It has faded a bit which is good!
My appointment is on the 13th of July which is a Friday! Friday the 13th! Hope it’s lucky for me and not bad. I just can’t stop thinking about it and its driving me mad. Only got 4 days left and I’m so nervous and scared. I’m going to be having an ultrasound and if they see anything suspicious they will do a mammogram and biopsy, but hopefully it won’t come to that.
So had my appointment today at the breast clinic couldn’t of gone worse the doctor felt my breasts and couldn’t feel anything which was good but that’s what I expected, the whole point I was going was to have an ultrasound, he said I needed one but the clinic was closed! It’s meant to be a one stop clinic. I now have to wait another 2 days till I get my scan and had to swap shifts with a college; otherwise I would have had to wait till Friday! I have another two stressful days to worry and obsess about it; I would have found out today that everything was ok if I’d had my ultrasound, so frustrating.
Well today is the day! Its ultrasound day, I know everything will be ok it’s just still a little nerve-racking. I have my ultrasound and then a fellow up appointment with the doctor straight after, which is good because I don’t have to wait.
Well I can finally say I’ve been given the all clear! It turns out I have fibrocystic breasts which isn’t dangerous but it’s also not curable. I couldn’t be more relived that it’s just that and nothing else. The ultrasound its self was very painful as my breast was quite sore anyway, the lady was also very unwelcoming and made me feel uncomfortable. But the doctor was very nice after my scan and was very informative.
I will do a separate blog about fibrocystic breasts at a later date.
I am very proud of myself for confronting a fear! I have been struggling with bursitis for almost over a year before it was diagnosed. After getting my diagnoses, the doctor asked me if I wanted a steroid injection. I was very apprehensive as Iv seen what they can do to the body and mental state, but luckily enough it was a very low dose so it wont effect any of these things.
Bursitis is inflammation and swelling of a bursa. A bursa is a fluid-filled sac which forms under the skin, usually over the joints, and acts as a cushion between the tendons and bones. The main symptoms of bursitis are pain, swelling and tenderness in the affected area. Mine was in my right hip and suspected left hip too, but the injection I had was in the right hip. I am happy to say I no longer have any hip pain in my right related to the bursitis! Now its no cure it can occur again but hopefully it wont !
The injection itself didn’t hurt when it went in, but when she pushed the liquid in I had pain round the back of my hip, which was really strange because I was excepting it to hurt where the injection was but apparently it’s called referred pain.
I would say to anyone thinking of having a steroid to read everything they can about it before having one as its best to be fully informed. Luckily mine was just in the muscle and wont enter my bloodstream which is when it can affect mood etc
I would advise anyone struggling with depression or anxiety or just a lack of confidence to read “feel the fear and do it anyway” By Susan Jeffers. This book has changed my life ! I’ve not even finished reading it and it has already changed the way I am thinking. In this book she teaches you to recognize your fear and do it anyway. By giving into the fear your giving it control ! The book covers hard topics like how not to become a victim of your life or circumstances. I’d admit on many occasions iv become consume with the fear and let it paralyzing me to the point I can no longer enjoy life. But life is too short to let the fear have that much control.
Everyone has hardships in their life or lose someone they love but the sooner you except you can’t control these aspects of your life, the more freedom you feel to control the things you can, like your happiness. Iv had allot happen to me in my life that if I let it could control everything I do and love but I have decided to take control and help myself to be come the best me I can be. Now that’s not to say there wont be struggles along the way but as long as you keep that bigger picture in your mind, you’ll always be heading in the right direction.
Positive thinking has been proved to not only improve mental health but also physical health. The power of the mind is truly remarkable! If you control your thoughts, the mind will repay you with positive energy and feelings. Never underestimate the mind.
I have been suffering with this for over a year now and it seems to be getting worse ! For those who don’t know what it is hears some of the symptoms .
- a cough or hiccups that keep coming back
- a hoarse voice
- bad breath
- bloating and feeling sick
- chest pain
- back pain
- abdominal pain
I suffer from most of these and its truly terrible !
Gerd is when acid flows up into the esophagus from the stomach (acid re-flux)
This is not like ordinary heartburn which may only occur now and then or goes away with gaviscon. This is persistent re-flux and pain which you get to the point were you can’t handle it anymore. Mine has been ongoing for so long that the doctor has referred me to a specialist. To be honest I’m so excited that this doctor might be able to improve my quality of life. I must admit I’m only now taking responsibility for my gut and making an effort to research about it and find whats the best foods to be eating. It’s so important to take responsibility for your own health.
There is only so many medications that can help. With GERD I’ve noticed that the medication they give you can actually do more harm than good. I’m on omeprazole which has helped with the burning but not with the pain, bloating and nausea. I’ve read a few studies about the long-term effects of this medication and in some cases mainly for people in there 40s and 50s can cause death ! Let me repeat that “can cause death”. I brought this up with my doctor when I saw her last and she said that’s only the case for long-term patient. But how are they allowed to offer you something which could potentially kill you, when you’re not suffering from a life threatening disease? apparently the older you get the more risk it is to take long-term, but they don’t tell you these things! You have to find out from online resources.
Another important fact they seem to avoid telling you is long-term sufferers of GERD have a higher risk of getting oesophageal cancer, which has a high death rate and it’s really hard to diagnose and treat. Most cancers are caught too late and there is not much they can do. Here are the signs to look out for :
- difficulty swallowing (dysphagia)
- persistent indigestion or heartburn
- weight loss
- pain in your throat or behind your breastbone
- a cough that won’t go away
- food coming back up
- pain in throat or behind the breast bone
- coughing up blood
- dark stools
If these signs are caught early the better your survival is, always trust what your body is trying to tell you.